Saturday, October 15, 2011
I hate when people sit in wheelchairs who don't need them...
On our way out, we ran into the truck driver who shared this gem with us: "I'm so glad you actually need a space...I hate it when people take up the handicapped spaces when they don't need them!"
Maybe he should look in the mirror? What about people with disabilities that aren't as visible? Maybe they need those 3 spaces he's taking up. Maybe we want to go there as a team after a wheelchair basketball game, but theres only room for one of us now.
Great job McDonalds somewhere near Janesville, WI. You and your delivery man successfully alienated wheelchair users from your restaurant.
Tuesday, July 12, 2011
Dancers featured on Fox's SYTYCD, use wheelchairs
Two weeks ago, the guest performers were members of the AXIS Dance Company, a non-profit organization whose mission is:
- to create and perform contemporary dance that is developed through the collaboration of dancers with and without disabilities
- to teach dance and educate about collaboration and disability through community education and outreach programs
- to promote and support physically integrated dance locally, nationally and internationally
Monday, April 4, 2011
Spoke benders: Quick hits for the week
- Here's the amazing story of Anthony Robles, a one-legged wrestler from Arizona State. Last w
eek, Robles won the NCAA national championship in the 125-pound division while finishing his season 36-0. After graduating, Robles says he plans to travel around the country as a motivational speaker.
- Based on past experiences, it comes as no surprise that Northwest/Delta Airlines has been fined $2 million by the Department of Transportation for improperly treating passengers with disabilities.
- This may be the first superhero ever created that uses a wheelchair.
- Finally, here's our latest entry for the Yahoo! Accessibility blog. It's an updated version of our original Kids Say the Darndest Things post. Enjoy!
Wednesday, March 2, 2011
Happy Birthday Chris!
Thursday, February 17, 2011
New surgery decreases risks of Spina bifida
In fact, as the article above states, babies who had surgery while still in the uterus are "more likely to walk and experience fewer neurological problems if operated on before being born rather than afterward." The surgery also helped limit the necessity of a brain shunt, which is the cause of many difficulties later in life. Indeed, the study was so successful that those running it cut it short. Rather than randomly choose some babies to have surgery after their birth, it was determined that every baby should have the relatively safe, prenatal surgery.
It's hard to say what the long-term repercussions of this study will be. But it's even harder to think of any that will be negative. Maybe costs are high at first and maybe doctors will need to be specially-trained. But those are small prices to pay for the trade-off of potentially limiting the effects of one of the most common types of birth defects.
Ten or fifteen years ago, when I worked with the March of Dimes, we stressed the importance of women taking folic acid during pregnancy in order to help prevent birth defects. While prevention remains a vital goal, it's encouraging to know that we have progressed to the point where we can possibly "repair" a baby even after the early onset of a birth defect. It may not be a perfect solution, but the recent study is an enormous milestone for researchers, doctors, and of course, all of us in the disabled community. Let's keep up the good work!
Tuesday, February 15, 2011
Selfish disabled people use their own parking passes...don't they know we need them?
Shake your head? But you don't understand!
1. Parking is very, very important.
2. Handicapped spaces are in the best locations, and
3. It is much easier to swipe a handicapped permit from a dead person, as those people tend to selfishly use the permits for their own disabilities when they are alive.
4. These are not ordinary people, she's a nurse and he's a dentist. So they are just using dead people's handicapped permits to help them care for other people more conveniently. THEY KNOW BEST!
Wednesday, February 2, 2011
SnOMG!
| Across the street from our apartment-this street still isn't plowed. |
| Taking the road since the sidewalks haven't been shoveled yet |
| 11:30pm-right when all the bad stuff hit! |
| In front of our apartment |
| The next day-snow stopped at 11:30am |
Friday, January 28, 2011
Happy Birthday!
Saving Private Welsh-Ryan from inaccessability
| Our view from the handicap "section" at Welsh-Ryan. |
Thursday, January 27, 2011
Welcome back!
The Different Spokes Team
Thursday, May 20, 2010
We're moving!

We're going to be doing the same kinds of posts, and the same kind of writing, even the same name, just at a different address. We hope you'll join us over there and that you continue to enjoy our blog.We will be reposting many of our past entries, but we're putting up new ones at the same time, so don't let the sight of a familiar post deter you from checking back.
Monday, May 17, 2010
Reader Question: Cutting in line at amusement parks or fairs
"One question I'd love for you to discuss is the "cut to the front" line at Disney World for those in wheelchairs. Your brother loved this ancillary benefit but I wonder how you feel about it... Is it necessary or not necessary?"
We touched on this briefly during one of our "Why Being in a Wheelchair Doesn't Suck" posts, but here's a more serious perspective.
Dan's Take: I personally love the benefit of not having to wait in line for an amusement park ride. Not only that but you get to stay on the ride twice without getting off. With the difficulty it takes to get out of your wheelchair and on to the park ride, it makes perfect sense for this policy to be in place. That being said, I can understand some people's frustrations when they spend 6 hours at an amusement park and can only ride three or four roller coasters due to the lengths of the lines. Meanwhile we can squeeze in ten or eleven different attractions during that time. One thing that people have to take into account is that there are a number of rides that we are not allowed to go on, due to back problems, height, balance, muscle strength, issues with seizures, etc. While I actually don't have a number of physical reasons that I can't wait in line, this is not the case for everyone with a physical disability.
Chris's Take: I can understand why seeing someone being able to cut hours in front of you in line could cause frustrations. Some people with disabilities do not really need to be able to do so. However, in my case, I would need to avoid extensive time waiting for a ride or attraction. I have heart and respiratory conditions, which make it difficult and often dangerous for me to wait in excessive heat or in damp or cold weather. In addition, because I have a muscle related disease, I get tired more easily than almost anybody else. I am even more limited than Dan in what I can do at an amusement park. While this policy does not always seem to make sense to the average amusement park visitor, extreme circumstances dictate that it must still be maintained. The workers cannot decide if one person is more "disabled" than someone else.
Saturday, May 15, 2010
Why Being In a Wheelchair Doesn't Suck
Let's face it: there are a lot of times when being in a wheelchair sucks.You can't go fly-fishing in Montana, you can't play hopscotch on the playground, and you can't steal batteries from the smoke detector to put in your remote control when the White Sox are on.
But there are times when being in a wheelchair doesn't suck. One is that you don't have to remove your shoes when you go to somebody's house. Since our shoes don't get dirty, our logical substitute are our wheels...and how ridiculous does this look?
Imagine trying to take Chris's wheels on and off his 400 pound chair!
Our wheels may be our shoes, but you won't get a very nice reaction if you ask someone to leave their wheelchair at the door. Just try it! Never having to remove your shoes means that you never have to learn how to tie them, since you don't have to take them off! Shoes last 5-6 years more, since they never wear out, and it saves you a ton of money. You don't have to replace your shoe polish as often, and you'll probably never snap a shoelace.
This has a plethora of advantages. Your feet stay warmer. You don't have to worry about foot odor at a party because you can hide behind your snazzy hightops. In some cases, you don't even have to worry about comfort, so you can buy those Manolo Blahniks that don't come in your size and sacrifice nothing for beauty. You can't track dog or bird poop through the house on the carpet your mom just washed. Puddles cower in your presence, and airport security is a breeze (until you factor in the personal pat-down). Overall, not having to remove your shoes is a benefit not many get to enjoy. Now having all these things happen to your wheels...that's a story for another day...
Friday, May 14, 2010
Reader question: Would you prefer able-bodied friends to "stoop to your level?"
Thursday, May 13, 2010
It's not always your fault...
Too often, when we run somebody over, we are told "sorry" by the victim. Instead, we should be the one apologizing. The fact is, we don't always bother to look where we're going, and just because we use a wheelchair doesn't mean we shouldn't be held accountable for our actions. By apologizing when we're the ones at fault, somebody is unknowingly portraying the idea that we have no control over our actions.
The point is, strangers should treat individuals in wheelchairs the same way they would treat everybody else. For instance, we don't expect you to hold the door open for any other reason than common courtesy. I mean, if you have a stroller, a family of seven, or if you'll unintentionally block the doorway yourself while holding it open, then by all means head on through! We'll take care of it ourselves. If you do want to help by holding the door open for us, stand on the outside of the door. That will clear the way for us to pass through and won't lead to a traffic jam as you block our path.
You also don't need leave us a 10-foot-wide radius as we wheel down the sidewalk. All we need is enough space for our chair to get by. And you don't need to rudely announce in the middle of a crowd that there's a "wheelchair coming through!" We're not wheelchairs, we're people. Chris and I go to baseball games all the time, we've done this before...
We've even had cars stop for us at green lights while we are patiently waiting to cross the road. This creates a dangerous situation. Do we go so you get the satisfaction of being a nice person? But what if other cars are coming that don't plan on stopping at a green light? In the end, the nicest thing to do would be to follow the traffic signals. We plan on doing that. It's why they're there.
In the end, we don't expect you to go out of your way to make our lives easier. If we're out and about in public, it's because we can fend for ourselves. And if we do need help, we're big boys and we'll ask for it.
Which brings me back to my original point. Don't go out of your way to have sympathy for us. If we screw up and run into you, let us apologize for it. Let us live our lives and learn from our mistakes so that we will improve upon them the next time. Don't get us wrong, we appreciate your good intentions, we just don't need help all the time.
So next time I run into you on the sidewalk, assess the situation. If it's your fault, apologize. If not, let me do the same and we'll both go about our days as if nothing happened...
Saturday, May 8, 2010
Minnesota Public Radio commentary by Haddayr Copley-Woods: Etiquette when interacting with the disabled.
Haddayr also has her own blog, which touches on current events, links to interesting stories, gives updates on her writing progress, and sometimes previews disability pieces before they are submitted elsewhere. Go check her out!
Monday, May 3, 2010
Why being in a wheelchair doesn't suck:
Let's face it: there are a lot of times when being in a wheelchair sucks. You can't dance the Cha Cha Slide at weddings, people who are 5'2" make you feel short, and sagging your jeans doesn't have the same effect as it would if you were able-bodied.
But there are perks to using a wheelchair. One reason is that you are memorable. This can be an advantage and a disadvantage. Let's take a look at some pros and cons.
As wheelchair users, we stand out in a crowd (even though we can't stand). We're recognizable after fewer meetings or visits than the average Bartolo. First impressions are always important, and we make a pretty unique one.
The advantages to always being recognized is that you often get better service in a restaurant. They will know you as a frequent customer and make sure your rootbeer doesn't have ice and your salad doesn't have cheese. You may get a nicer table, and faster service. Being more recognizable also helps you keep acquaintances and contacts longer without having to do any work. This can lead to more connections, opportunities, job offers, and friendships than you may not have had otherwise. You also stand out to girls (or boys if that's your preference) and have an aura of mystery over other males (or females).
The disadvantages to being so memorable is that you are then expected to know who all of these people are. People honk at you as they drive past in their cars and make you feel like you're being stalked. Professors stop you on the sidewalk to chat and you don't remember them. This makes it difficult to introduce others, because you don't want to admit you don't remember them, and they just know you because you were the token wheelchair user in their classroom.
Our advice for this situation is to introduce your friends and ignore that the person you're talking to has a name. Try not to suddenly shout out their name once you remember them, as this will draw attention to the fact that you didn't recognize them in the first place. And always travel in pairs, so your partner in crime can introduce themselves and save a potentially sticky situation.
If these solutions don't work for you, the best way we can think of to be less memorable is take what you can't do, and just do it. Get up and walk.
Sunday, May 2, 2010
Reader email! What is proper bathroom etiquette?
Sometimes we get a question from a reader regarding posts that we've written. And we're nice people, so we like to respond to those questions! Both Chris and I offer our responses to this recent question from Liz in Washington, D.C.,"A couple posts ago you mentioned that the accessible bathroom stalls are necessary to fit your wheelchairs in and I was reminded of a Dear Abby question I read once a few years ago that I felt never really got answered in the response...At a sporting event or such, if there are a lot of people in line, when does someone let a wheelchair user go ahead of them so that he can have the accessible stall - when the person using a wheelchair gets in line or when he gets close to the front? I was just wondering what your thoughts were on the issue. People got all sorts of angry on both sides in the comments if I recall correctly."
Dan: To me, I don't think I deserve to move to the front of any line simply because I'm in a wheelchair. So in a crowded bathroom, if the accessible stall is freed up, the next person in line has every right to take it. However, if there is more than one stall available, please leave the wheelchair stall empty. It's the only one I can use, while an able-bodied person can use any other stall. The one caveat to this would be if I were at a specific place in line where I happened to be directly in the doorway. This would block flow of traffic both in and out of the bathroom. Therefore, it would be justified to allow me to take a different place in line so everyone can move freely. To be honest, I feel weird if a person three spots ahead of me tells me to go first into the accessible stall. While I know it's just other people being nice, it seems as if I'm being singled out and being given special treatment.
Chris: Simply stated, handicapped accessible stalls should be reserved for users of wheelchairs. Obviously, crowded bathrooms like those at a sporting event or concert present a different set of issues. Perhaps one should use the 1-10 level of urgency scale. If the number is 7 or higher, please use the stall. I think it would be a bit narrow-minded to think that only people with disabilities should use the stalls. We should be given priority because those are the only stalls our wheelchairs actually fit into. But as far as I am concerned, if you take a little time to evaluate the situation, then no worries. Just realize that if you use the handicapped stall when other ones are open, when you come out and see someone like me or Dan waiting, then you will probably feel pretty stupid.
Thursday, April 29, 2010
Training in a new personal assistant
As personal assistants come and go, simply finding a new one is not the only challenge. You also need to take the time and effort needed to properly train one in.
The most important thing is to make sure that he or she can take care of your needs. A personal assistant needs to be able to complete your routine each day. They have to be able to help you get positioned in your wheelchair or in bed. Of course, they also need to show that they can be on time, be responsible, and communicate. The specific requirements for a personal assistant are different according to the person they are helping.
A huge part of training a PA involves building trust with that person. After all, it is a relationship which includes trusting your physical well-being largely to someone other than yourself. In all honesty, this takes the most time to develop. It is impossible to know that a person can assist you until they have actually done so a number of times.
It is important to play down any anxiety you may be feeling as you train in a new PA. If you believe that you have hired the right assistant, then that is usually the case. It is not likely that they will drop you, start arguments or crash your wheelchair into the wall. One must also learn to develop and exhibit a large amount of patience with your personal assistant. This will make the transition as easy as possible. Even though I have not covered everything, this should give you a brief overview of the types of things to look for when finding the perfect PA.
Friday, April 23, 2010
Giving credit where credit is due
This clip, and the message the show is portraying, is fantastic. None of the characters are being pushed around by others, Artie is shown as being "just another student," and there's never any excuses made if there's something he can't do. This is the first mainstream show I can remember where a person with a disability is seen as just a part life, just as many of us are in our workplace, school, etc.
However, many in the disabled community are upset that an actor with a disability was not chosen for the role of Artie (McHale is able-bodied). In an article published in USA Today, Gloria Castaneda of the Media Access Office says, "There are very talented performers with disabilities. ... We just don't know what producers are thinking." I know what the producers are thinking. He or she is trying to find the best actor for a specific role. The producer should not be forced to limit himself by solely searching for an actor that uses a wheelchair. Are there actors out there who use a chair? Sure! But that doesn't mean they could sing, dance, and fit this role as well as McHale does. Think about it this way. As much as I don't want to be passed over for a job merely because I use a chair, I also don't want to get a job merely because I use a chair. We can't have it both ways in the disabled community. We can't want special treatment (such as being chosen for a specific acting role), while at the same time push for full assimilation into mainstream society.
It seems that there are some in the disabled community who constantly point out the negative in any situation. We should be celebrating the message sent by "Glee," not criticizing the creators for choosing an able-bodied actor. If we constantly criticize the able-bodied community, even while they are making strides towards equality, what incentive is there for them to continue their efforts? They will start to believe that the disabled community will never be pleased. Because of that, we need to choose our battles wisely, and give credit where credit is due. In the end, baby steps are okay. And what "Glee" is doing is not just a baby step, but a fairly sizable leap towards acceptance of those with disabilities. So good work "Glee," keep it up!

